Establishing Reliability in Clinical Outcomes Research: COS's Leading Role at SSIEM Annual Symposium 2019

As we navigate the dynamic and multifaceted world of Clinical Outcomes Research, the importance of establishing robust and reliable measures cannot be understated. Clinical Outcome Solutions (COS) is honored to be at the vanguard of such crucial endeavors, exemplified by our recent contribution to the Society for the Study of Inborn Errors of Metabolism (SSIEM) Annual Symposium 2019.


A Deep Dive into the 5 Domain NPCSS ClinRO Reliability Study

Tara Symonds, our Chief Scientific Officer, and Stacie Hudgens, our CEO, were instrumental in establishing the reliability of a critical tool - the 5 Domain NPCSS ClinRO. The study, ‘A Study to Assess the Inter and Intra-rater Reliability of the 5 Domain NPCCSS’ provided valuable insights into the tool’s efficacy, contributing to the broader understanding of its application in clinical settings. Collaborating with esteemed professionals like Marc Patterson, Christine I Dali, Christina Guldberg, and Eugen Mengel, this endeavor is a testament to COS's commitment to rigorous, evidence-based research.


Showcasing Research Excellence at SSIEM Symposium

The significance of this research is further magnified as the study's findings will be showcased as a poster presentation at the prestigious SSIEM Annual Symposium 2019, held in Rotterdam, Netherlands, from 3rd to 6th September 2019.

For the uninitiated, SSIEM's symposia are a global platform for professionals, researchers, and thought leaders to share, discuss, and collaborate on topics related to inherited metabolic diseases. Being featured at such an esteemed gathering reflects the quality and relevance of our research and positions COS as a thought leader in the realm of Clinical Outcomes Research.


Looking Ahead with Renewed Commitment

The journey of establishing the reliability of clinical tools is intricate, demanding meticulous attention to detail and a deep understanding of the subject matter. Our involvement in the 5 Domain NPCSS ClinRO project underlines our unwavering commitment to ensuring that clinical outcome measures are rigorous and meaningful.

As we look forward to more collaborations, studies, and contributions, our mission remains clear – to further the field of Clinical Outcomes Research with dedication, expertise, and innovation.

For those attending the SSIEM Annual Symposium 2019, we invite you to explore our poster presentation and engage in insightful discussions.

Please stay connected with us for more insights, updates, and breakthroughs from the forefront of Clinical Outcomes Research.

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